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ALL PROCEEDS go directly to the Jonah Pournazarian GSD 1B Fund at the University of Florida. Jonah’s doctor, Dr. David Weinstein, director of the University of Florida’s Glycogen Storage Disease Program, is leading a team doing breakthrough research on this rare childhood disease that until 1971 was fatal. Today, the cure is on the horizon: the missing gene and the carrier virus that can deliver the gene effectively have both been identified. And while you probably don’t know anyone with GSD — a disease that affects one in 100,000, or in Jonah’s case, one in 1,000,000 — this research and work has broad implications for a range of other liver diseases.

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  • Chocolate Bar, The Book

    This elementary school had some fun things to share! What’s so chocolate bar to you?



  • Chocolate Bar, The Book

    Bom dia Brasil! É Tão Chocolate! Por favor subscrever o canal, YouTube.

    Vídeo: https://youtu.be/SAr-be7kvcQ



  • Chocolate Bar, The Book

    Please check out this amazing email from the librarian at a school Dylan & Jonah will be visiting:

    "I just wanted to share a bit about our extraordinary week here. I changed my regular curriculum and spent the week preparing all the classes for your visit. Your ChocolateBarBook.com website is brilliant, by the way! Not only are our students really excited, but the videos I shared, and the discussions we subsequently had were amazing. Dylan and Jonah have already touched their hearts and opened their minds big time. I have older kids saying they want to become scientists when they grow up to research cures for rare diseases. Some of the questions were phenomenal, even amongst kindergarteners. And they have plenty more for the boys! Students who have siblings who’d been to the library earlier in the week were raising their hands when they saw the website, sharing that their other sibling had already shared what they’d learned at school with their families. They’ve been taking the information home! Seriously, how many kids talk about their school day with their parents!?! My words don’t do justice. We are all ready, excited and feel privileged that we will be meeting you all in a few weeks."

    Dylan & Jonah are so excited to be able to visit schools and share the Chocolate Bar story!
  • Chocolate Bar, The Book

    Update: Dylan is still going strong and as determined as ever to raise money until Jonah and everyone with GSD is cured! This video is a reminder of his passion - please subscribe to our YouTube Channel for updates and new videos on his progress! We deeply appreciate your ongoing support. Share this story!


    Dylan Wants to Cure Jonah

    Please subscribe to our channel by clicking here: http://goo.gl/x9LfNX! We will be adding lots of fun videos all the time! We hope that Chocolate Bar helps k...