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“Chocolate Bar” means awesome to Dylan Siegel, the 8-year-old who wrote CHOCOLATE BAR, the book, at just 6 years old to raise money towards a cure for his best friend Jonah’s rare liver condition, GSD Type 1b.

Beginning at a school event in November 2012, Dylan sold 200 copies of his book plus 100 custom wrapped chocolate bars (donated by Whole Foods Market), making over $5,000 in just hours. Then, Dylan and best friend Jonah held a book reading and signing at a Barnes & Noble bookstore, attracting attention from local media and landing them appearances on CBS’ The Doctors, Headline News’ Raising America, Fox News’ Fox & Friends, The Today Show in Australia, an interview with Chelsea Clinton for NBC Nightly News with Brian Williams, and ABC World News with Diane Sawyer. The boys have also appeared in print on numerous websites, in newspapers and magazines. To date, nearly 25,000 copies of Dylan’s book have sold in over 60 countries worldwide, helping Dylan reach his $1 million goal in just two years. But Dylan says won’t stop until Jonah is cured.

All money raised goes directly to Jonah’s research fund at the University of Florida where his doctor, GSD expert Dr. David Weinstein, is completing the research phase and preparing for human clinical trials. The cure for GSD will prove that gene therapy works and therefore charts a course for changing the face of health care.

While trying to cure GSD Type 1b, we also hope to show children of all ages that they have power and their actions can change the world.

About GSD Type 1b

Affecting literally one in a million, Glycogen Storage Disease Type 1b is an incurable genetic condition. Children born with this disease lack the liver enzyme that turns glycogen into glucose, rendering them unable to regulate their blood sugar levels. Untreated, their blood sugar can drop dangerously low, resulting in severe hypoglycemia, seizures, and even death. Currently, the only known treatment is a mixture of store bought cornstarch and water, which must be consumed every few hours. Cornstarch takes longer for the body to metabolize, maintaining blood sugar levels for an extended period of time. Children with GSD Type 1b also have very low white blood cell counts and therefore struggle with fighting infections. So even mild infections can mean a hospital visit for weeks at a time.

Check out this video to learn more about GSD 1B:

 

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  • Chocolate Bar, The Book

    This elementary school had some fun things to share! What’s so chocolate bar to you?



  • Chocolate Bar, The Book

    Bom dia Brasil! É Tão Chocolate! Por favor subscrever o canal, YouTube.

    Vídeo: https://youtu.be/SAr-be7kvcQ



  • Chocolate Bar, The Book

    Please check out this amazing email from the librarian at a school Dylan & Jonah will be visiting:

    "I just wanted to share a bit about our extraordinary week here. I changed my regular curriculum and spent the week preparing all the classes for your visit. Your ChocolateBarBook.com website is brilliant, by the way! Not only are our students really excited, but the videos I shared, and the discussions we subsequently had were amazing. Dylan and Jonah have already touched their hearts and opened their minds big time. I have older kids saying they want to become scientists when they grow up to research cures for rare diseases. Some of the questions were phenomenal, even amongst kindergarteners. And they have plenty more for the boys! Students who have siblings who’d been to the library earlier in the week were raising their hands when they saw the website, sharing that their other sibling had already shared what they’d learned at school with their families. They’ve been taking the information home! Seriously, how many kids talk about their school day with their parents!?! My words don’t do justice. We are all ready, excited and feel privileged that we will be meeting you all in a few weeks."

    Dylan & Jonah are so excited to be able to visit schools and share the Chocolate Bar story!
  • Chocolate Bar, The Book

    Update: Dylan is still going strong and as determined as ever to raise money until Jonah and everyone with GSD is cured! This video is a reminder of his passion - please subscribe to our YouTube Channel for updates and new videos on his progress! We deeply appreciate your ongoing support. Share this story!


    Dylan Wants to Cure Jonah

    Please subscribe to our channel by clicking here: http://goo.gl/x9LfNX! We will be adding lots of fun videos all the time! We hope that Chocolate Bar helps k...